Education Program Director, Vasculitis Foundation

Organization: Vasculitis Foundation

Job Title: Education Program Director
Job Status: Full-Time
FLSA: Exempt
Reports to: Chief Program Officer

Position Summary

The Education Program Director develops, implements, and manages impactful education programs and resources for patients, caregivers, and healthcare providers (HCPs), in alignment with the Vasculitis Foundation’s (VF) mission and strategic priorities. The Director oversees education efforts and content across digital and print channels, and shapes programming for in-person patient education conferences. Collaborating with internal teams and diverse external stakeholders, the Director ensures that programs reflect the evolving needs of the vasculitis community, using data to continually assess and improve educational offerings.

Key Responsibilities

Patient and HCP Educational Programs

• Lead the VF’s rare-disease education efforts by defining goals, shaping program direction, and ensuring learning experiences meet the needs of patients, caregivers, and clinicians.
• Develop, deliver, and oversee patient and HCP educational materials and programs—such as web content, disease brochures, guidebooks, and courses—and help facilitate volunteer advisory committees.
• Manage multiple educational projects simultaneously, developing timelines, and ensuring all activities align with approved work plans, budgets, and schedules.

• Oversee medical review processes and revisions to VF educational materials and website content, ensuring clinical accuracy and currency.  
• Ensure all educational materials and programs are inclusive and accessible to the diverse audiences we serve.
• Design and conduct surveys and focus groups to gather patient and HCP feedback on content relevance and delivery, using insights to refine programs and strategies.

• Identify opportunities for collaboration and resource-sharing with other rare disease organizations.
• Stay current on health education learning trends, and vasculitis-related research, policy, and emerging issues to ensure materials remain timely, relevant, and easily accessible.

Conference Programming

• Develop measurable, outcomes-driven educational goals for conferences that define success, guide program design, and support continuous improvement.
• Plan and execute educational programming, topics, and speakers for patient education conferences in collaboration with staff, patients, medical partners, sponsors, and volunteers.
• Represent the VF at in-person conferences, serving as a knowledgeable and compassionate ambassador.

• Conduct and oversee pre- and post-conference communications, evaluation surveys, and documentation.

Collaboration and Stakeholder Engagement

• Collaborate with VF staff, volunteers, medical professionals, patients, and other community partners to deliver coordinated and comprehensive educational programming.
• Provide support and guidance to team members and volunteers involved in program and event planning.
• Participate in planning meetings and shared projects that support organization-wide objectives.

• Maintain professional and timely communication with all VF stakeholders, including staff, medical partners, volunteers, board members, corporate sponsors, and vendors.

Required

• Bachelor’s degree in Education, Health Sciences, Communications, or a related field
• Minimum of 5-7 years supervisory and team leadership experience
• Background in medical or rare-disease subject matter and terminology, coupled with a strong understanding of adult learning principles and the ability to translate complex concepts into engaging, accessible formats tailored to diverse audiences
• Exceptional project management skills and a proven ability to oversee multiple timelines, deliverables, and workflows simultaneously and effectively
• Strong sense of ownership, consistently leading projects with initiative, follow-through, and a commitment to excellence
• Highly detail-oriented and skilled at maintaining organization and precision across tasks
• Excellent written and verbal communication skills and the ability to build rapport with diverse audiences, such as physicians, patients, volunteers, vendors, and corporate sponsors 
• Proficiency with common digital tools and platforms including Google Suite, MS Office, Zoom, Slack, WordPress, and other project management platforms
• Willingness to travel for job-related events, meetings, and conferences approximately 2-6 times per year
• Flexible mindset and an ability to adapt easily to shifting priorities

 Preferred (but not required)

• MPH or medical/healthcare educational background  
• Experience in nonprofit program management and/or healthcare education 
• Familiarity with patient advocacy work and/or rare disease communities 
• Expertise in digital education and instructional design for medical professionals and patients 
• Previous experience planning and coordinating educational programming for conferences

The Vasculitis Foundation offers a comprehensive and competitive benefits package, including:

• Employer-sponsored health insurance: the Foundation covers 85% of the employee premium (dependent coverage available at full cost); optional dental and vision coverage
• A fully remote work environment, with travel for conferences and related events
• 403(b) retirement plan with 5% employer match after six months
• Unlimited Paid Time Off (PTO)
• Generous family leave
• Professional growth opportunities as the Education Program expands and new organizational needs emerge

Work Environment

The Vasculitis Foundation is a fully remote organization. This position requires effective performance in a home office, regular collaboration with team members across time zones through virtual communication tools, and travel to conferences and related events. 

Equal Opportunity

The Vasculitis Foundation is proud to be an equal opportunity employer. We celebrate diversity and are committed to creating an inclusive environment for all employees. We prohibit discrimination or harassment based on race, color, religion, age, sex, national origin, disability, genetics, veteran status, sexual orientation, gender identity or expression, marital or caregiver status, or any other characteristic protected by law.