Rare Disease Jobs

Lead the Vasculitis Foundation’s education efforts by designing and managing patient and clinician programs, resources, and conference curricula to improve care and support for the vasculitis community.

Sobi seeks an experienced, patient-centric Senior Director to lead US Hematology Marketing and drive brand strategy, launch execution, and cross-functional collaboration for its hematology franchise.

Experienced market access leader needed to design and execute payer-facing strategies and patient support initiatives for Ascendis Pharma's Endocrinology Rare Disease portfolio from the Princeton, NJ office.

Lead Probably Genetic’s patient-facing storytelling, community strategy, and end-to-end experience to drive enrollment in research and testing programs and amplify patient voices.

Lead the HCP non-personal promotion strategy and omnichannel marketing for LIVDELZI in PBC, driving HCP education, adoption, and measurable ROI within a cross-functional commercial team at Gilead.

Lead institutional marketing strategy and execution to engage healthcare professionals, drive HCP-facing campaigns, and support field teams for a specialty pharma brand.

Sobi is hiring a Director of Regulatory Advertising and Promotion to lead US ad/promo regulatory strategy and ensure compliant, effective promotional and disease-state communications for rare-disease products.

Lead and scale Lexeo’s marketing organization to shape brand strategy, launch readiness, and commercial planning for first-in-class AAV gene therapies in genetic cardiomyopathies.

Ergomed Group is hiring a Business Development Director to lead CRO sales and account growth across the San Francisco region, focusing on Oncology and Rare Disease clients.

Avalere Health is hiring a Copywriter to produce patient- and HCP-focused pharmaceutical content, manage manuscripts and references, and contribute to creative concepting and client presentations.

Sobi seeks an experienced Clinical Account Specialist to deliver regional commercial and clinical impact for a new gout therapy by combining clinical expertise, data-driven territory planning, and cross-functional influence.

Pfizer seeks an experienced Hemophilia Account Specialist to lead HTC and hospital engagement across the Chicago region, executing tailored account plans to advance patient access and commercial objectives for its hemophilia portfolio.

Lead Pfizer's rare disease endocrinology efforts in the Pacific Northwest by developing COE partnerships, executing strategic specialty-selling plans, and driving appropriate access and utilization of Somavert, Ngenla and Genotropin.

Sobi is hiring a Senior Marketing Manager to lead patient-centric hematology marketing, congress strategies, and budget management for rare-disease therapies.

Vertex seeks an Associate Director to develop and deliver comprehensive Kidney field training programs that drive launch readiness, scientific fluency, and commercial excellence across field and field leadership teams.